Kua ngū te reo tīoriori o te atatū, me he manu kōrihi o te ata. E te māreikura e Hūhana,
moe mai rā i tō moengaroa.
We deeply grieve the loss of Suzy Stevens, a fearless and brilliant lived experience
leader and advocate, an inspiring and irreplaceable colleague and friend.
For more than 30 years, Suzy fought to uphold the mana, autonomy and human rights of
people with lived experience of mental distress. She was staunch; she was never swayed;
and she could never be bought or persuaded against her better judgement. She always
spoke the truth as it was and was prepared to live “outside the system” for what she
knew was right.
Despite her staunch activism against the oppression of people with lived experience, Suzy
never made any enemies. She was held in high esteem by the people and systems in power
she questioned, even as she rallied against them.
Her wairua/spirit and whakaaro/views were energetic and non-judgmental, and carried a
supportive aroha that inspired many of her peers to realise their own dreams and set up
lived experience services and networks. Suzy instinctively recognised that activism
isn’t about the activist, and that any successes she gained were measured only by the
difference she made for others.
Suzy began her lived experience activism in the 1980s, starting at Wellington’s Madness
Anonymous, a peer-run and led advocacy service, at a time when all the psychiatric
hospitals were still open, other alternatives barely existed and community
discrimination against people with mental distress was normal and accepted.
Heavily influenced by other great liberation movements of the 1960s and 70s in New
Zealand, Suzy, Madness Anonymous and other peer-run groups such as Psychiatric Survivors
fought at the coalface of the lived experience revolution in New Zealand. They formed
and took action as a social movement of self-identified ‘mad’ people against psychiatric
coercion and social exclusion.
Suzy campaigned for government policies that allowed people to participate in their own
care and have a legal right to challenge their status under the Mental Health Act. When
Madness Anonymous became the Wellington Mental Health Consumer’s Union in the 90s, she
led them to their first contract with the then Area Health Board and turned public
organisations who had initially feared and silenced them to request to hold community
meetings in their premises. In a short time and against the odds, Suzy built up
considerable respect for the Union and her mahi.
Over the years the Psychiatric Survivor movement softened its edge, but Suzy’s activist
spirit never did. She helped set up the first consumer networks in Auckland - a legacy
carried on by Auckland’s last remaining network Changing Minds, which continues to be
run by and advocates for lived experience voices across the country. She fought against
institutionalised community services, rising rates of compulsory treatment and
stubbornly-low employment for people with mental distress on behalf of peer-led
organisations such as Kites Trust, Te Ara Korowai and PeerZone. As part of Like Minds,
Like Mine, she tirelessly dedicated her expertise to challenging stigma and
discrimination against people with lived experience in the workplace.
Suzy was tenacious to the end and constantly innovating to realise her vision. In just
the last few years she set up and co-ordinated the New Zealand chapter of the
progressive international model Intentional Peer Support, and became a University Fellow
at Yale for her work with Let(s)Lead, a leadership training programme in the health
sector for people with lived experience.
Suzy was our warrior and our hero, and her impact for people with lived experience will
outlive us all.
She walked in the dark places
Where madness fought
Tooth and nail
With the cold,
Of judgement and subjugation
And in that emptiness
And shared with souls there
through raw emotion
Or struggling against power
Her warmth and light
of the sun.
Nō reira e te māreikura, koutou kua whetūrangitia, moe mai rā.
We farewell thee
esteemed, noble and respected friend, may you rest in eternal peace.
In my universe there are few heroes. Suzy was, and always will be, one. Mike
I have nothing but admiration for Suzy’s infinite determination to stand up and fight for
what feels right and just. I am nowhere near being as brave or courageous as Suzy, but I
hope one day I will be. Lisa Archibald
Suzy has been one of the rocks in my own journey and has had an indelible influence on
the sector. She has left her mark, and we are grateful for the legacy, and the
Suzy-shaped hole that she has left behind. Chris Hansen
In some ways I see my life as a collection of unrealised potentials. Suzy was able to
guide me into realising some of that potential in ways that I became proud of - Kapiti
Choices and the starting of Intentional Peer Support in Northland are two that stand
out. Graham Johnson
Suzy was an incredible force of nature, a fearless advocate and an incredibly insightful
activist who did so much for so many in the mental health systems. She will be sorely
missed. Val Little
May her memory and passion continue to drive us in our pursuit for a just society.
Chyrell Bellemy, Yale
Her legacy and diligence will never be gone, her work has forever shaped our sector and
cannot be taken away.
May your steady compass, in the presence of the powerful magnetic forces of the failed
status quo, be a lesson for us all. Mary O’Hagan
Special thanks to Lisa Archibald, Deb Platt, Mike Sukolski, Mary O’Hagan and Leo McIntyre
for their collaboration on this tribute.